Caregiver Knowledge of Risk Factors Associated with Complex Congenital Heart Disease and Quality of Life Outcomes Metadata

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Title

  • Main Title Caregiver Knowledge of Risk Factors Associated with Complex Congenital Heart Disease and Quality of Life Outcomes

Creator

  • Author: Hutchinson, Jessica B
    Creator Type: Personal

Contributor

  • Chair: Middlemiss, Wendy
    Contributor Type: Personal
    Contributor Info: Committee Chair
  • Committee Member: Mitchell, Yolanda
    Contributor Type: Personal
  • Committee Member: Boesch, Miriam
    Contributor Type: Personal
  • Committee Member: Woolf-King, Sarah
    Contributor Type: Personal

Publisher

  • Name: University of North Texas
    Place of Publication: Denton, Texas
    Additional Info: www.unt.edu

Date

  • Creation: 2020-12

Language

  • English

Description

  • Content Description: Congenital heart disease is the most common birth defect globally, affecting both children and their families. Twenty –five percent of children experiencing a CHD birth defect are diagnosed with complex CHD (cCHD), signifying critical heart dysfunction requiring one or more open-heart surgeries during the first year of life. With medical advances, cCHD survival rates have almost tripled in the last three decades. This has resulted in an increase in the number of morbidities associated with cCHD, which is drastically impacting the need to support quality of life outcomes for a child with cCHD and their family. The two most prevalent unaddressed risks for quality of life outcomes in the cCHD population are child and caregiver mental health and child's neurodevelopmental disabilities. Congenital heart disease is the most common birth defect globally, affecting both children and their families. Twenty-five percent of children experiencing a CHD birth defect are diagnosed with complex CHD (cCHD), signifying critical heart dysfunction requiring one or more open-heart surgeries during the first year of life. With medical advances, cCHD survival rates have almost tripled in the last three decades. This has resulted in an increase in the number of morbidities associated with cCHD, which is drastically impacting the need to support quality of life outcomes for a child with cCHD and their family. The two most prevalent unaddressed risks for quality of life outcomes in the cCHD population are child and caregiver mental health and child's neurodevelopmental disabilities. The present study sought to address the relationship between caregiver knowledge of cCHD developmental challenges (i.e., outcomes related to neurodevelopmental disabilities, mental health, and provider quality-care approach) and children's and caregiver's quality of life outcomes, inclusive of academic functioning ability of children with cCHD, children with cCHD and their caregivers' mental health functioning, and the overall satisfaction with the nature of the healthcare provider of the child with cCHD. A total sample size of N = 46 participants were included in the current study. Results that caregivers' knowledge of cCHD risks to quality of life outcomes explained a much greater percentage of the variance in caregiver satisfaction with healthcare providers (R2 = 0.350, p < 0.001) compared to number of surgical interventions (R2 = 0.058, p = 0.047). Clinical implications and implementation for use of a holistic, integrated approach are strengthened by the study findings.
  • Physical Description: vi, 57 pages

Subject

  • Keyword: Congenital Heart Disease
  • Keyword: Quality of Life
  • Keyword: Mental Health
  • Keyword: Critical Congenital Heart Disease Risks
  • Keyword: Health Sciences, Mental Health
  • Keyword: Education, Sciences

Collection

  • Name: UNT Theses and Dissertations
    Code: UNTETD

Institution

  • Name: UNT Libraries
    Code: UNT

Rights

  • Rights Access: public
  • Rights Holder: Hutchinson, Jessica B
  • Rights License: copyright
  • Rights Statement: Copyright is held by the author, unless otherwise noted. All rights Reserved.

Resource Type

  • Thesis or Dissertation

Format

  • Text

Identifier

  • Accession or Local Control No: submission_2292
  • Archival Resource Key: ark:/67531/metadc1752366

Degree

  • Degree Name: Doctor of Philosophy
  • Degree Level: Doctoral
  • Academic Department: Department of Educational Psychology
  • College: College of Education
  • Degree Discipline: Educational Psychology
  • Degree Publication Type: disse
  • Degree Grantor: University of North Texas

Note

  • Embargo Note: The work will be published after approval.
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