An Analysis of Federal Sickle Cell Disease Program FY 1971 - FY 1976 Page: 8
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CRS - 8
B. Federal Su ort for Sickle Cell Disease Pro ects Within the National Institutes
of Health
Currently, sickle cell disease projects are supported by general research or
general operations funds within three of the National Institutes of Health (NIH),
the National Institute of Arthritis, Metabolism, and Digestive Diseases (NIAMDD),
the National Institute of General Medical Sciences (NIGMS), and the National Institute
of Child Health and Human Development (NICHD). The provisions of Title XI, Part A of
the Public Health Service Act became law on May 16, 1972 (Public Law 92-294), and became
effective in FY 1973. However, until FY 1974, there were no appropriations under
Title XI for the Sickle Cell Disease Program. The appropriations bills for FY 1973,
H.R. 15417 and H.R. 16654, included appropriations for the Program under Title XI in
the budget of the National Heart and Lung Institute (NHLI); these bills were vetoed
by the President on August 16, 1972 and November 1, 1972, respectively. Funding for
programs in NIAMDD, NICHD, and NIGMS continued at a level relatively similar to the
appropriations for FY 1972. During F! 1973, support in the NHLI increased by 50% over
FY 1972 levels. J/
In FY 1973, the provisions of Title XI, Part A were implemented, but the support
was derived from standard general research appropriations. Subsequently, the Secretary
DHEW designated NIH as the agency to coordinate research, and the NELI as the lead
institute for the total DHEW sickle cell disease effort. Also in FY 1973, the Health
Services Administration (HSA, formerly the Health Services and Mental Health Adminis-
tration, HSMHA) was charged with providing service functions in the Sickle Cell Disease
Program. These service functions included the screening, counseling, and education
portions of the DHW effort. NIH's research activities in Sickle Cell Disease are primarily
the responsibility of the National Heart and Lung Institute. This institute specializes
in research to develop possible preventive measures, and treatment of the sickle dell
crisis. NIAHDD, NICHD, and NIGMS also have a research role: these institutes specialize
in molecular biology research to determine the genetics of sickle cell anemia and the
received appropriations at the F 1972 level of support in these conti
resolutionss Public Law 92-334 (Jul ,172,Pbi Lw9-71(coe 2,17)
and Public Lawvp3-52 (July 11,97) 1973).9251 Otoe 2,192)-777
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Chapman, Cynthia B. An Analysis of Federal Sickle Cell Disease Program FY 1971 - FY 1976, report, April 11, 1975; Washington D.C.. (https://digital.library.unt.edu/ark:/67531/metadc992938/m1/10/: accessed July 16, 2024), University of North Texas Libraries, UNT Digital Library, https://digital.library.unt.edu; crediting UNT Libraries Government Documents Department.