Reciprocal Suffering: Caregiver Concerns During Hospice Care

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Article on caregiver concerns during hospice care and reciprocal suffering.

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14 p.

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Wittenberg-Lyles, Elaine; Demiris, George; Oliver, Debra Parker & Burt, Stephanie February 2011.

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Article on caregiver concerns during hospice care and reciprocal suffering.

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14 p.

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Abstract: Context: For many hospice caregivers, the constancy and difficulty of caregiving impact their physical quality of life and cause depression, psychological distress, guilt, loneliness, and restrictions on social activities. Objectives: Deviating from traditional unidimensional research on hospice caregivers, this study explored the transactional nature of reciprocal suffering by examining caregiver concerns through four dimensions: physical, psychological, social, and spiritual. Methods: Researchers analyzed audiotapes of intervention discussions between hospice caregivers and research social workers. Results: Results indicated that, of the 125 pain talk utterances, most referenced psychological concern (49%), followed by physical (28%), social (22%), and spiritual (2%) concerns. Reflections on concerns revealed a global perspective of caregiving, which highlighted the patient’s needs juxtaposed to the caregiver’s recognized limitations. Conclusion: By examining the reciprocal nature of suffering for caregivers, this study reinforced the need for assessing caregivers in hospice care, with specific emphasis on the importance of providing caregiver education on pain management.

This is the author manuscript version of the article. Reprinted with permission from Elsevier Science Ltd., all rights reserved. The final definitive version is available here: http://dx.doi.org/10.1016/j.jpainsymman.2010.04.026

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  • Journal of Pain and Symptom Management, 41(2), Elsevier Science Ltd., December 13, 2010, pp. 1-14

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  • Publication Title: Journal of Pain and Symptom Management
  • Volume: 41
  • Issue: 2
  • Page Start: 383
  • Page End: 393
  • Peer Reviewed: Yes

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Materials from the UNT community's research, creative, and scholarly activities and UNT's Open Access Repository. Access to some items in this collection may be restricted.

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  • February 2011

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  • Feb. 28, 2014, 10:41 a.m.

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  • Dec. 8, 2023, 1:42 p.m.

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Wittenberg-Lyles, Elaine; Demiris, George; Oliver, Debra Parker & Burt, Stephanie. Reciprocal Suffering: Caregiver Concerns During Hospice Care, article, February 2011; [New York, New York]. (https://digital.library.unt.edu/ark:/67531/metadc276273/: accessed July 24, 2024), University of North Texas Libraries, UNT Digital Library, https://digital.library.unt.edu; crediting UNT College of Arts and Sciences.

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